Carlton W. Reeves, United States District Judge.
Melody Worsham has a unique perspective on Mississippi's mental health system. She knows the system as a patient because she has struggled with serious mental illness (SMI) throughout her life. But she also knows it as a professional, in her job as a certified peer support specialist. That means Ms. Worsham is trained to help other persons with SMI "overcome the obstacles that might be getting in their way of living the life they want to live. And also navigating the system, helping to find resources, and then just being moral support, you know, just being there for somebody." Trial Tr. 323.
Ms. Worsham was one of dozens of witnesses who testified in this case about whether Mississippi unnecessarily institutionalizes persons with SMI. The trial record spans four weeks of testimony, thousands of pages of exhibits, and voluminous legal briefs by both sides, and still does not begin to reflect the enormity of Mississippi's mental health system. One would be forgiven for throwing their hands up in exasperation at the complexity of the situation.
Yet we reached a moment of lucidity when Ms. Worsham was cross-examined by one of the State's attorneys. Ms. Worsham readily testified that the State was acting in good faith. "I think the people that I have worked with at the Department of Mental Health really want to see this change. I really do." Trial Tr. 344. But Ms. Worsham could not agree that the State was making a "major effort" to expand community-based services throughout Mississippi:
Trial Tr. 348.
The Court fully agrees with Ms. Worsham. On paper, Mississippi has a mental health system with an array of appropriate community-based services. In practice, however, the mental health system is hospital-centered and has major gaps in its community care. The result is a system that excludes adults with SMI from full integration into the communities in which they live and work, in violation of the Americans with Disabilities Act (ADA).
At its heart, this case is about how Mississippi can best help the thousands of Melody Worshams who call our State home. The State generally understands the urgency of these needs, and it understands its obligations under federal law. It is moving toward fulfilling those obligations. The main question at trial was, has it moved fast enough to find itself in compliance with the ADA?
The United States Department of Justice has presented compelling evidence that the answer to that question is "no." Mississippi's current mental health system —the system in effect, not the system Mississippi might create by 2029—falls short of the requirements established by law. The below discussion explains why.
In 1990, Congress passed the ADA, "the last major civil rights bill to be signed into law,"
Congress found that "historically, society has tended to isolate and segregate individuals with disabilities, and, despite some improvements, such forms of discrimination against individuals with disabilities continue to be a serious and pervasive social problem." Id. § 12101(a)(2). It specifically acknowledged that such discrimination "persists in such critical areas as ... institutionalization" and "health services." Id. § 12101(a)(3). Congress then wrote that "individuals with disabilities continually encounter various forms of discrimination, including outright intentional exclusion, ... failure to make modifications to existing facilities and practices,
To establish a violation of the ADA, "plaintiffs must demonstrate that (1) they are `qualified individuals' with a disability; (2) that the defendants are subject to the ADA; and (3) that plaintiffs were denied the opportunity to participate in or benefit from defendants' services, programs, or activities, or were otherwise discriminated against by defendants, by reason of plaintiffs' disabilities." Henrietta D. v. Bloomberg, 331 F.3d 261, 272 (2d Cir. 2003) (citation omitted).
Title II of the ADA prohibits discrimination by public entities. It establishes that "no qualified individual with a disability shall, by reason of such disability, be excluded from participation in or be denied the benefits of the services, programs, or activities of a public entity, or be subjected to discrimination by any such entity." 42 U.S.C. § 12132. "Title II does not only benefit individuals with disabilities.... Congress specifically found that disability discrimination `costs the United States billions of dollars in unnecessary expenses resulting from dependency and nonproductivity.'" Frame v. City of Arlington, 657 F.3d 215, 230 (5th Cir. 2011) (en banc) (citations omitted).
Congress instructed the Attorney General to promulgate regulations implementing Title II. Those regulations require public entities to "administer services, programs, and activities in the most integrated setting appropriate to the needs of qualified individuals with disabilities." 28 C.F.R. § 35.130(d). Such a setting "enables individuals with disabilities to interact with nondisabled persons to the fullest extent possible." 28 C.F.R. Pt. 35, App. B. Public entities "shall make reasonable modifications in policies, practices, or procedures when the modifications are necessary to avoid discrimination on the basis of disability, unless the public entity can demonstrate that making the modifications would fundamentally alter the nature of the service, program, or activity." 28 C.F.R. § 35.130(b)(7)(i).
The Supreme Court interpreted Title II in the landmark case Olmstead v. L.C. ex rel. Zimring, 527 U.S. 581, 119 S.Ct. 2176, 144 L.Ed.2d 540 (1999). It first noted that "Congress explicitly identified unjustified `segregation' of persons with disabilities as a `form of discrimination.'" 527 U.S. at 600, 119 S.Ct. 2176 (citation and brackets omitted). The Court then reasoned that "unjustified institutional isolation of persons with disabilities is a form of discrimination [that] reflects two evident judgments."
Id. at 600-01, 119 S.Ct. 2176 (citations and brackets omitted).
Because discrimination on the basis of disability might not be obvious, the Court tried to explain the "dissimilar treatment" in simpler terms. It came up with this: "In order to receive needed medical services, persons with mental disabilities must, because of those disabilities, relinquish participation in community life they could enjoy given reasonable accommodations, while persons without mental disabilities can receive the medical services they need without similar sacrifice." Id. at 601, 119 S.Ct. 2176 (citation omitted).
Olmstead's final holding reads as follows:
Id. at 607, 119 S.Ct. 2176.
Though Olmstead spoke of "the State's treatment professionals," courts recognize that any treatment professional, whether employed by the state or not, may be used to show that community placement is appropriate. See Fisher v. Okla. Health Care Auth., 335 F.3d 1175, 1181 (10th Cir. 2003). If establishing a case required reliance on the government's own treatment professionals, states could circumscribe the requirements of Title II. See Joseph S. v. Hogan, 561 F.Supp.2d 280, 290-91 (E.D.N.Y. 2008); Long v. Benson, No. 4:08-CV-26, 2008 WL 4571904, at *2 (N.D. Fla. Oct. 14, 2008); see also Martin v. Taft, 222 F.Supp.2d 940, 972 n.25 (S.D. Ohio 2002).
In 2011, the United States Department of Justice issued a findings letter summarizing the results of its long investigation into the State of Mississippi's mental health system. It concluded that Mississippi was "unnecessarily institutionalizing persons with mental illness" in violation of
The parties have stipulated that the State is a public entity that must comply with the ADA and its implementing regulations. Trial Stipulations ¶ 1.
The United States alleges that Mississippi over-relies on state psychiatric hospitals in violation of Olmstead. Adults with SMI are forced into segregated hospital settings instead of being able to stay in their communities with the help and support of their families and local services. The United States claims that as a result, all Mississippians with SMI are denied the most integrated setting in which to receive services, and are at serious risk of institutionalization.
The case culminated in a four-week bench trial in June and July of 2019.
Motion practice established that the United States filed this action pursuant to its authority to enforce Title II of the ADA, 42 U.S.C. § 12133, and under the Civil Rights of Institutionalized Persons Act, 42 U.S.C. § 1997a. See United States v. Mississippi, No. 3:16-CV-622-CWR-FKB, 2019 WL 2092569, at *2-3 (S.D. Miss. May 13, 2019); see also DAI II, 675 F.3d at 162 (finding that the United States had standing to bring suit on behalf of thousands of individuals with SMI living in segregated settings). The United States has complied with the necessary statutory prerequisites. The State has not challenged that these prerequisites have been met at or since trial.
The State, however, has raised several arguments that all suggest the same conclusion: despite the statutory authority to bring such a suit, the United States cannot prevail in this case because it is the sole plaintiff. Without other named plaintiffs or a certified class of individuals, the State says, there is no violation of the ADA. These arguments must be addressed first, because while not expressly articulated as such, they invoke the basic principle of Article III standing that a plaintiff must suffer an "injury-in-fact." Lujan v. Defs. of Wildlife, 504 U.S. 555, 560, 112 S.Ct. 2130, 119 L.Ed.2d 351 (1992).
First, the State argues that the United States has not proven that anyone was unnecessarily hospitalized. Second, the State argues that the United States has not proven that anyone was denied the
The first two arguments were refuted at trial. The United States' experts provided dozens of examples of individuals who were unnecessarily hospitalized or hospitalized too long because they were excluded from community-based services. Some of the persons the United States' experts analyzed for this suit were still hospitalized when the experts interviewed them. All of that evidence will be discussed below. In this section, though, the Court will discuss the third argument: whether this case is somehow deficient for emphasizing that Mississippians remain at risk of institutionalization and re-institutionalization.
Most of the cases brought pursuant to Title II's integration mandate are brought by individual plaintiffs or classes of persons. E.g., Olmstead, 527 U.S. at 593, 119 S.Ct. 2176 (reciting that plaintiffs L.C. and E.W. were persons with disabilities who challenged their institutionalization). This case is different. Here, the United States alleges, inter alia, that Mississippi's system pushes thousands of people into segregated hospital settings that could have been avoided with community-based services. When persons with SMI are eventually discharged, it claims, Mississippi's ongoing lack of community-based services means they are at serious risk of re-institutionalization.
The Fifth Circuit has not reviewed a similar case, so decisions from around the country guide this Court's determination. Cf. Shumpert v. City of Tupelo, 905 F.3d 310, 320 (5th Cir. 2018), as revised (Sept. 25, 2018) ("If there is no directly controlling authority, this court may rely on decisions from other circuits to the extent that they constitute a robust consensus of cases of persuasive authority.").
The cases show that Title II protects not only those persons currently institutionalized, but also those at serious risk of institutionalization. See Steimel v. Wernert, 823 F.3d 902, 911-13 (7th Cir. 2016); Davis v. Shah, 821 F.3d 231, 263 (2d Cir. 2016); Pashby v. Delia, 709 F.3d 307, 321-22 (4th Cir. 2013); M.R. v. Dreyfus, 663 F.3d 1100, 1116 (9th Cir. 2011), amended by 697 F.3d 706 (9th Cir. 2012); Fisher, 335 F.3d at 1181; Steward v. Abbott, 189 F.Supp.3d 620, 633 (W.D. Tex. 2016); Pitts v. Greenstein, No. 10-635-JJB-SR, 2011 WL 1897552, at *3 (M.D. La. May 18, 2011); DAI I, 653 F. Supp. 2d at 187-88 (finding violation of ADA and Rehabilitation Act where approximately 4,300 individuals with SMI were "residing in, or at risk of entry into" segregated settings), vacated sub nom. DAI II, 675 F.3d at 162 (finding that original plaintiff lacked organizational standing but the United States could bring such a suit). In other words, the prospective approach taken by the United States is supported by the weight of authorities from around the country.
The State argues that these cases have differing fact patterns. The argument is unpersuasive because these cases all evaluated the key premise at issue here— whether at risk of institutionalization claims are valid.
In Pashby, for example, the Fourth Circuit rejected the idea that an Olmstead claim is limited to instances of "actual institutionalization." 709 F.3d at 321. It instead agreed with the plaintiffs that Olmstead protects those facing "risk of institutionalization." Id. at 322. The Tenth Circuit added that a contrary conclusion makes little sense, as the ADA's "protections would be meaningless if plaintiffs were required to segregate themselves by
Unsatisfied with this principle, Mississippi pivots, and says those cases are distinguishable because those defendants were making "policy changes" to take away services, whereas here, Mississippi is simply moving slowly on deinstitutionalization. But that is not a complete statement of the facts or the law. The evidence showed that Mississippi is making policy changes that both decrease and increase institutionalization. For example, the State is increasing hospital beds at some of its facilities. The law, meanwhile, indicates that the ADA and Olmstead protect persons trapped in a snail's-pace deinstitutionalization.
The ADA is unique among civil rights laws. It is "a `broad mandate' of `comprehensive character' and `sweeping purpose' intended `to eliminate discrimination against disabled individuals, and to integrate them into the economic and social mainstream of American life.'" Frame, 657 F.3d at 223 (citations omitted). Somewhat unusually, the ADA "impose[s] upon public entities an affirmative obligation to make reasonable accommodations for disabled individuals. Where a defendant fails to meet this affirmative obligation, the cause of that failure is irrelevant." Bennett-Nelson v. Louisiana Bd. of Regents, 431 F.3d 448, 454-55 (5th Cir. 2005) (emphasis added and citations omitted).
This affirmative obligation extends to deinstitutionalization cases. Olmstead explicitly holds that "States are required to provide community-based treatment" if three elements are met. 527 U.S. at 607, 119 S.Ct. 2176 (emphasis added).
Case law also indicates that states dragging their feet on deinstitutionalization can be held accountable under Olmstead.
In Frederick L., the Third Circuit was faced with a situation with similarities to our own. Both parties sought deinstitutionalization and citizens' "integration into community-based healthcare programs." Frederick L. v. Dep't of Pub. Welfare of Pa. (Frederick L. II), 422 F.3d 151, 154 (3d Cir. 2005). They disputed only the timeline of implementation (or lack thereof). The appellate court found that although the Commonwealth of Pennsylvania "proffers general assurances and good faith intentions to effectuate deinstitutionalization," that was not enough to satisfy the ADA.
Id. at 158-59. The Third Circuit concluded that under Olmstead, states must provide more than "a vague assurance" of "future deinstitutionalization"; that "verifiable benchmarks or timelines" are "necessary elements of an acceptable plan"; and that any plan must "demonstrate a commitment to community placement in a manner for which [the state government] can be held accountable by the courts." Id. at 155-56. This Court agrees, and will therefore consider the State's arguments regarding the timing of deinstitutionalization later in the Olmstead analysis, rather than as a bar to the entire action.
Given all of these authorities, the Court cannot sustain the State's preliminary legal arguments. The Court will now turn to the evidence.
Mississippi's mental health system looks like a broad continuum of care—with community services on one end and the state hospitals on the other. On one end, the State is divided into regions, each covered by a community mental health center that provides a range of services. On the other end, a handful of state hospitals are used to institutionalize patients when necessary.
Dr. Robert Drake, one of the United States' experts, testified that the community-based system described in Mississippi's manuals "is well written." Trial Tr. 105. In practice, however, the continuum of care morphs from a line into a circle. Mississippians with SMI are faced with a recurring cycle of hospitalizations, without adequate community-based services to stop the next commitment. This process of "cycling admissions" is "the hallmark of a failed system." Trial Tr. 119.
"The State offers community-based mental health services primarily through fourteen regional community mental health centers (CMHCs). DMH is responsible for certifying, monitoring, and assisting the CMHCs." Trial Stipulations ¶ 5. DMH promulgates standards for the CMHCs and provides them with grant funding, but the management of each CMHC is left to a board appointed by the county supervisors within the catchment area covered by the CMHC. Id. ¶ 7; Trial Tr. 1579.
"Community-based services" refers to a bundle of evidence-based practices. If these services are provided in a county, they are provided through the regional CMHC. Each kind of service is described in more detail below.
The evidence established that the descriptions of the services provided by CMHCs is adequate. The problem is that the descriptions do not match the reality of service delivery, in terms of what is actually provided and where it is provided. Some of those realities are presented below.
The following map provides an understanding of the regional catchment areas that each CMHC covers. It shows that PACT services do not exist in 68 of Mississippi's 82 counties.
PACT is the most intensive community-based service. It targets individuals who need the most assistance staying out of the hospital. The prime candidate for PACT is someone who has had multiple hospitalizations, such as the 743 Mississippians hospitalized more than once between 2015 and 2017. See PX 405 at 28.
As of September 2018, however, only 384 people in the state were receiving PACT services. See JX 50 at 8. The problem is obvious. If there are more than 700 heavy utilizers who have been hospitalized multiple times, but fewer than 400 persons receive PACT services, the penetration rate of PACT services is low.
Again, one obvious reason for the under-enrollment of heavy utilizers is geographical. The below map shows that many of Mississippi's most-hospitalized persons live in areas where PACT services are not available.
The first explanation is understandable. The second is less persuasive. Other states' experiences show that patients do in fact choose to have intensive community-based services in their lives. We know this because other states have significantly higher PACT penetration rates. One of the State's experts testified that if Mississippi's PACT services had the nation's average penetration rate, a total of 1,329 Mississippians with SMI would be receiving PACT services. Trial Tr. 1539. That is nearly 1,000 persons more than are being served today.
Geographic availability does not always translate into true accessibility. The Court heard from Sheriff Travis Patten, the top law enforcement official in Adams County, Mississippi. He testified that although his county is covered by the CMHC for Region 11, when people call the mobile crisis line, the Adams County Sheriff's Department is dispatched to respond to the call. That is in large part because the mobile crisis team is based in McComb, over an hour away. His department never sees the mobile crisis team. See Trial Tr. 914-15.
Ms. Worsham, the certified peer support specialist, has called the mobile crisis line in Gulfport "dozens of times." Trial Tr. 335. They came only once. Trial Tr. 336. Every other time, they told her to take herself or her client to the hospital or call the police. Trial Tr. 336-37.
It is no surprise then that the mobile crisis lines covering Adams County and Gulfport are utilized less often than others in the state. The below map shows the utilization of this service by region:
Not all of the CMHCs have crisis stabilization units. Sheriff Patten does not have a CSU in Adams County or in the larger Region 11 catchment area. That is a missed opportunity, as the State does not dispute that CSUs are an effective diversion from hospitalization. DMH data show that CSUs successfully divert a patient from a state hospital 91.85% of the time. See PX 354 at 9.
Peer support services are included in the Mississippi Medicaid State Plan, but there is no indication that the service is being utilized across the State. Shockingly, in the three most populous regions of the State, CMHCs billed Medicaid for a total of 17 persons who received peer support
Meanwhile, Mississippi has only two peer-run drop-in centers—places that allow anyone suffering from SMI to come in at any time and connect with peers. Those are located in Gulfport and Jackson. See Trial Tr. 328-30 and 2206.
In 2018, 257 Mississippians received supported employment services. See DX 302 at 21; Trial Tr. 1515 and 1558. Not surprisingly, despite working as a peer support specialist within the community, Melody Worsham is not aware of anyone with SMI who has received supported employment services. See Trial Tr. 341.
One of the State's experts, Ted Lutterman, testified that Mississippi's penetration rate on supported employment is "quite low." Trial Tr. 1515. If it were increased to the national average, he said, a total of 1,266 people would benefit from the service. Trial Tr. 1558. That is (once again) 1,000 more people a year than the State is currently serving.
In 2019, DMH attempted to increase supported employment services by giving new $40,000 grants to seven CMHCs. See DX 12 at 2; Trial Tr. 1631-32. Each grant would pay for one additional supported employment specialist, who in turn could assist another 20 to 25 clients per region. Trial Tr. 1632. While that is a step in the right direction, it represents one fewer supported employment specialist than DMH recommended per region in 2011, and will help a maximum of 175 Mississippians with SMI. See Trial Tr. 1632. A DMH official explained this at trial by saying, "You just have to go with the funding you have." Trial Tr. 1632.
The CHOICE housing program is grossly underutilized. Overall, about 400 Mississippians have benefited from CHOICE. See Trial Tr. 742. The map below shows seven CMHC regions with fewer than five individuals enrolled in CHOICE, despite an estimate by the program administrator that over 2,500 beds statewide are needed. See JX 5 at 3.
One reason many community services are underutilized is the lack of data-driven management. See PX 407 at 31; Trial Tr. 1396. DMH executives admitted that they do not regularly review data on community-services utilization, much less use that data to drive programmatic changes. See Trial Tr. 1639-40; Allen Dep. 10-11; Holloway Dep. 34-35; Hurley Dep. 48-49; Toten Dep. 21-22, 109, 133-34, 140, 194, and 208-09. As an example, the clinical director at South Mississippi State Hospital testified that the committee established to monitor hospital readmission rates stopped meeting regularly. Reeves Dep. 24-25. "I think we addressed whatever we were capable of addressing," he said. Id. at 25.
A different kind of management problem concerns DMH's relationship with community health providers. DMH views CMHCs as independent, autonomous organizations,
On the other end of the continuum of care are the state hospitals. "DMH funds and operates four State Hospitals: Mississippi State Hospital in Whitfield, MS (MSH), East Mississippi State Hospital, in Meridian, MS (EMSH), North Mississippi State Hospital, in Tupelo (NMSH), MS, and South Mississippi State Hospital, in Purvis, MS (SMSH)."
In 2018, a total of 2,784 Mississippians were institutionalized across the four hospitals. See PX 412 at 3. That year, the State had 438 state hospital beds.
Mississippi has relatively more hospital beds and a higher hospital bed utilization rate than most states. See PX 393 at 39; PX 394 at 20 and 27. The State concedes that its "hospital utilization rate is higher than the national and regional rates," but emphasizes that since 2008 it has fallen faster than the regional and national averages. Docket No. 232 at 44.
While the number of hospital beds in Mississippi fell from 2011 to 2014, it has remained relatively stable since then. See PX 412 at 1. The graphic below demonstrates such:
Bo Chastain, the Director of Mississippi State Hospital, testified that he intends to operate the same number of beds each year. Trial Tr. 2272. One of the United States' experts testified that "East Mississippi [State] Hospital actually added beds as did South Mississippi State Hospital in 2018." Trial Tr. 1362.
When compared to other states, Mississippi allocates significantly more of its budget to institutional settings and correspondingly less of its budget to community-based services. See PX 407 at 29. Mississippi's funding allocation is about a decade behind other states. In 2015, for example, Mississippi's proportional spending on community-based services was less than the 2006 national average. See Trial Tr. 1544.
The State admits that the share of its budget spent on institutional care remains above the national average. See Docket No. 232 at 44. If federal Medicaid dollars are excluded from the calculation, only 35.65% of Mississippi's mental health spending went to community-based services in 2017. See PX 319; PX 407 at 29; Trial Tr. 1419.
There is no dispute that the state hospitals are "institutional, segregated settings." Trial Stipulations ¶ 11. If you are in a state hospital, your "routine is determined by other people, and the food is determined by other people, and your privacy level is determined by []other people." Trial Tr. 511. Life there is best described by those who have experienced it.
According to Blair Duren, who has been admitted on three occasions, state hospitals are "very scary."
Trial Tr. 568-69. Another patient told one of the United States' experts that "it was the most humiliating experience she had ever had in her life." Trial Tr. 966. Others said it was "like a prison." Trial Tr. 966. "It's no life to be in a hospital," one of the United States' experts said. "It's being
Ms. Worsham told the Court that:
Trial Tr. 335. Individuals at East Mississippi State Hospital have to earn back the privilege of wearing their wedding ring. An expert said that was "unusual and extreme." Trial Tr. 1333.
T.M. is a man with SMI who has been admitted to state hospitals on six different occasions. Trial Tr. 778. While hospitalized in Meridian, on the other side of the state from his mother in the Delta, he once wrote her a letter saying, "I'm not sure when [or] if I'll ever see you again." PX 1102 at 2; Trial Tr. 782.
It particularly struck this Court that a single hospitalization can result in you losing custody of your children. That is what happened to Person 11, a 41-year-old woman with two daughters. When she was interviewed by one of the United States' experts, she still had not regained custody of her children. Trial Tr. 853-54.
Transition planning is another area of concern. While individuals being discharged are often given a date to report to the local CMHC, there is no follow-up or consistent connection to local services. See Trial Tr. 818. DMH documents show that in 2016, only 20% of patients met with a CMHC representative before being discharged from the hospital. See PX 151 at 9. The Social Services Director at MSH, who supervises 40 social workers, testified that a social worker's involvement with the patient ends as soon as the patient leaves the hospital. Fleming Dep. 8 and 79.
It is common for state hospitals to use the same discharge plan even after an individual has returned for another commitment. Katherine Burson, one of the United States' experts, "found the discharge planning to be formulaic. People pretty much got the same discharge plan, and it — I didn't see discharge plans change, even when in the past the discharge plan hadn't worked." Trial Tr. 1091. Person 3, for example, was admitted to state hospitals three times between 2014 and 2016, and his planning looked identical upon each discharge. See Trial Tr. 819-32. Some patients did not have access to medication upon discharge, which led to rehospitalization "relatively quickly." Trial Tr. 445.
The Court heard from several DMH executives who testified about the extent of community-based services currently provided by the State.
The United States, in contrast, called several people who have used the State's mental health services or whose family members have used such services. They all testified that a lack of community-based services is devastating to individuals with SMI and their families.
The Court heard harrowing and tragic stories about what happens when people fall through the cracks. Through tears, H.B. shared one of those stories.
His daughter, S.B., is a 52-year-old woman who has relied on the State's mental health system for approximately three decades. S.B. has been in state hospitals 23 times in that span. H.B. has been forced to initiate commitment proceedings several times, because he has no other options and S.B. does not receive any services when she is not hospitalized.
C.R. told the Court about her cousin, T.M., who has been hospitalized six times. One time, a social worker at MSH called and asked C.R.—a layperson—"what is the discharge plan for T.M.?" At the time, C.R. did not even know that T.M. had been hospitalized. C.R. has never heard about crisis stabilization services that could help T.M. when he is in the community.
The witnesses also offered glimpses into what it is like when the State provides the services it promises. Dr. Kathy Crockett, Executive Director of Hinds Behavioral Health Services, testified for the State about the array of services provided in Hinds County, including (among other things) a PACT team, crisis stabilization unit, and drop-in center. See Trial Tr. 2192-94. She says they serve everyone they can, but would "love to" expand their community-based services because there are others out there who need assistance. Trial Tr. 2228 and 2235.
Kim Sistrunk is the PACT team leader in Tupelo. While she has funding only to provide services to persons living in Lee County, she described a committed, on-the-ground team that helps clients manage SMI and learn to live fulfilled lives.
Ms. Sistrunk has seen firsthand how her team can divert clients from hospitalization. The team has a client in his fifties who does not have any family or friends to support him. They noticed that he had become suicidal, and they were able to get him into a crisis stabilization unit for a few days. The providers at the CSU "tweaked" his medications successfully. The PACT team was there to pick him up and take him home. Prior to his connection to PACT services, this gentleman had been committed for longer stays in state hospitals because of similar suicidal symptoms. See Trial Tr. 540-41.
Ms. Worsham shared Dr. Crockett and Ms. Sistrunk's sentiments about the impact community-based services can have.
Trial Tr. 326.
In many ways, this case is a battle of the experts.
The United States retained six experts for its Clinical Review Team (CRT). The CRT was comprised of Dr. Drake,
Dr. Todd MacKenzie, a statistician,
Id. at 4. Finally, Dr. MacKenzie used a weighted analysis to draw conclusions about the population of adults with SMI. See Trial Tr. 296.
The experts found that "nearly all, if not all, of the 154 patients would have spent less time or avoided hospitalization if they had had reasonable services in the community."
Dr. Drake was "surprised" to find that most of the 154 individuals the CRT reviewed did not receive the community-based services that the State claims to have in its policy manuals. Trial Tr. 105. Ms. Burson, the psychiatric occupational therapist, testified that most of the people she interviewed were not receiving any sort of community-based services. Trial Tr. 1080-81. The State's experts have offered no opinions as to why so many of the 154 were without community-based services between hospitalizations.
Mississippi, of course, hired its own experts.
The State hired a group of psychiatrists to review the medical records of patients within the sample that the CRT evaluated.
The State's team then uniformly opined that the individuals they reviewed could not have been properly served in the community at the time of their hospitalization. Dr. Younger explained that the people she reviewed "have severity of illness to such a degree that they cannot be treated adequately in the community most of the time despite real good services, medicine, support." Trial Tr. 2119.
The State's experts also testified that the standard of care was met while in the hospital, and that discharge planning was "adequate[ ]." See Trial Tr. 1825-40 and 1990.
In addition to the experts who evaluated the 154 individuals in the sample, both sides retained experts to provide more sweeping analyses of the mental health system.
The United States called Kevin O'Brien, a healthcare consultant, who was admitted as an expert in health systems cost analyses.
The State brought Dr. Lona Fowdur, a healthcare economist, to challenge Mr. O'Brien's cost analysis.
Reviewing the expert opinions, the most conservative estimate is that the costs of community-based care and hospitalization are about equal. This opinion was reiterated by Dr. Jeffrey Geller, another of the State's experts.
The parties then presented expert testimony about the management of the mental health system. Melodie Peet was the United States' systems expert.
One helpful illustration of the problem came when Ms. Peet compared PX 419, a map showing the home addresses of the top 30% of state hospital bed utilizers, with PX 413, a map showing where PACT teams—which she called "ACT programs" —are available. See Trial Tr. 1338-39. The overlay showed gaping holes in coverage. She explained that "the people represented by the red dots are the very people who are targeted as the ideal patient to be served by an ACT program. So this isn't a theoretical analysis. These are real human beings who have demonstrated by their pattern of service utilization that they would be benefited by an ACT program. And many of them are in the unserved areas of the state." Trial Tr. 1339.
Ms. Peet pointed out that the PACT program is not just unavailable for many Mississippians, but is an example of DMH's inability to use data and strategic planning to expand services. In its most recent end-of-year report, for example, DMH discussed its goal of expanding PACT utilization by 25%. See JX 50 at 8. The goal was conservative, and DMH did not meet it. The number of PACT users went from 328 in 2017 to only 384 in 2018. See Trial Tr. 1340. Ms. Peet said,
Trial Tr. 1341 (emphasis added).
This problem extends beyond PACT. Ms. Peet explained with precision how certain services are not available in certain regions, and how statewide there is a gross underutilization of available community-based services. See Trial Tr. 1345-46 (discussing underutilization of Medicaid billing for community support services), 1351-53 (discussing underutilization of mobile crisis services), 1354 (discussing lack of capacity for supported employment), 1354-55 (discussing lack of capacity for supported housing), and 1356-57 (discussing underutilization of Medicaid billing for peer support services).
Finally, Ms. Peet concluded that Mississippi, having already identified the correct services, is capable of changing the system to make services more available and effective. She suggested expanding community-based services statewide, actively using data to target future services, and increasing oversight of and technical assistance to providers. See Trial Tr. 1377-84.
In response, the State called Ted Lutterman, an expert in "policy analysis regarding the financing and the organization of state mental health systems."
Dr. Geller presented similar testimony. He said that when Mississippi's "distribution of funding" is compared to other states, "Mississippi's not an outlier." Trial Tr. 2413. Yet Dr. Geller also agreed that Mississippi has one of the highest percapita rates of psychiatric beds in the country. See Trial Tr. 2425. One table he reviewed from the witness stand showed that only the District of Columbia and Missouri have higher rates of psychiatric beds than Mississippi. PX 393 at 41-42.
Dr. Geller's comparisons were not always reliable. His expert report had admonished the United States, claiming that its "assessment of Mississippi's mental health spending has no relationship to
Finally, Dr. Geller cautioned the Court that health disparities are related to poverty, and opined that because Mississippi is a very poor state, even an increase in funds might not solve Mississippi's mental health problem. "Mississippi had one of the lowest rates of providers per capita of any state. This means that if you put in funds, you still might not get the services because you don't have the people to provide the services, that poverty, being in a rural area, lack of providers, access to services, puts Mississippi at a high ranking for poor access to services." Trial Tr. 2407.
The stipulations and testimony establish the basics. Thousands of Mississippians suffer from SMI and are qualified individuals with disabilities under the ADA. The State is required to comply with Title II of that law. Yet the State's mental health system depends too much on segregated hospital settings and provides too few community-based services that would enhance the liberty of persons with SMI. The "great majority" of those Mississippians "would prefer to receive their services in the communities where they are living." Trial Tr. 1331.
Even understanding these basics, though, the sheer number of expert opinions, witnesses, and legal arguments can obfuscate whether Mississippi's system actually violates the Supreme Court's mandate in Olmstead. For guidance, then, it is important to return to the text of that case.
Olmstead's final holding says that "States are required to provide community-based treatment for persons with mental disabilities when" (1) "treatment professionals determine that such placement is appropriate," (2) "the affected persons do not oppose such treatment," and (3) "the placement can be reasonably accommodated, taking into account the resources available to the State and the needs of others with mental disabilities." 527 U.S. at 607, 119 S.Ct. 2176. Each of these elements will be discussed in turn.
First, the treatment professionals on the CRT determined that the individuals they interviewed would be appropriate for community-based services. They described exactly which community-based services would be beneficial to the patient's current and future needs.
Second, the CRT found that everyone they interviewed, except for one individual, was not opposed to treatment in the community. The State's experts never addressed this question and did not refute the CRT's findings on this point.
Third, the United States' experts showed that providing community-based services can be reasonably accommodated within Mississippi's existing mental health system. Ms. Peet testified that the State already has the framework for providing these services, and can more fully utilize and expand that framework to make the services truly accessible. The State's experts did not refute this testimony. While they testified that Mississippi is doing well when compared to others in the region, that is not the applicable standard. And the State's own experts admitted that institutional and community care cost the system the same amount of money, so the State cannot claim that the resources are not available or that the costs constitute an unreasonable accommodation.
Overall, when the evidence is evaluated under the precise standard set forth in Olmstead, the United States has proven that Mississippi's system of care for adults with SMI violates the integration mandate of the ADA.
A state is excused from having to make reasonable modifications if it "can demonstrate that making the modifications would fundamentally alter the nature of the service, program, or activity." 28 C.F.R. § 35.130(b)(7)(i).
Mississippi argues that the United States' proposed modifications would "fundamentally alter" the nature of its mental health system. Docket No. 232 at 64. Under Olmstead, the State has the burden "to show that, in the allocation of available resources, immediate relief for the plaintiffs would be inequitable, given the responsibility the State has undertaken for the care and treatment of a large and diverse population of persons with mental [illness]." 527 U.S. at 604, 119 S.Ct. 2176.
The Supreme Court has explained that one way a state can take advantage of this defense is by demonstrating "a comprehensive, effectively working plan for placing qualified persons with mental [illness] in less-restrictive settings, and a waiting list that moved at a reasonable pace." Id. at 605-06, 119 S.Ct. 2176 (emphasis added). A sufficient plan is one that "set[s] forth reasonably specific and measurable targets for community placement" and demonstrates a "commitment to implement" its terms. Frederick L. II, 422 F.3d at 158 (rejecting Pennsylvania's fundamental alteration defense).
DMH's senior executives testified that Mississippi does not have such a plan. Deputy Executive Director Steven Allen, a 30-year veteran of DMH, said he had never seen an Olmstead plan at DMH. He added that even if he had, it would be "useless." Trial Tr. 2025. Executive Director Diana Mikula, a 24-year veteran of the agency, defended her deputy by claiming that he would not need to read an Olmstead plan in his job because "he knew the vision." Trial Tr. 2381. Somewhat confusingly, she then claimed that DMH's Olmstead plan is "a collection of documents" such as annual strategic plans and
This latter testimony was not persuasive. In the two-and-a-half years Mr. Allen has served as Deputy Executive Director, he has been "in charge of the programmatic responsibilities of the agency, whether it be the programs [it] directly operate[s] that provide services, or through the grants or the certification process, those divisions and bureaus." Trial Tr. 2025. If he has never seen an Olmstead plan at DMH, this Court is inclined to believe him, since he has the longest tenure of the executives and is in the best position to know.
Ms. Mikula's eagerness to defend her staff, her agency, and to some extent herself is understandable. But it would be very odd for Mr. Allen, a person whose judgment she trusts, and a person with substantial experience in the mental health field, to be unaware that the strategic plans and budgets he reviews are, in fact, an Olmstead plan. It is more likely that DMH simply lacks an Olmstead plan.
In any event, the Court also cannot accept the alternative suggestion—that any plan Mississippi has is "comprehensive" and "effective[]." Olmstead, 527 U.S. at 605-06, 119 S.Ct. 2176. A collection of smaller, routine documents is hardly "comprehensive." And the evidence discussed above showed that the existing documents are not effectively meeting the State's own goals. Among other examples, PACT planned to expand over 2017-2018 and failed to meet its modest goal; supported employment is below the level DMH recommended in 2011; and despite the State's best intentions about shifting from hospitalization to community-based care, the number of state hospital beds has been stable since 2014.
If a comprehensive, effective plan would satisfy Olmstead, Mississippi's scattered, ineffective assemblage of documents cannot.
The State's attorneys then press that the cost of community-based services is itself a fundamental alteration. But as already mentioned, by the admission of its own experts, community-based services and hospitalization cost the system approximately the same amount of money, though community-based services receive federal Medicaid reimbursement that hospitalization does not. The worst case is that the State would spend the same amount of money it does now—just redirected to more cost-effective services. The best case for the State is that the movement from hospitalization to community-based services would save money.
The case law further weakens the State's argument. The weight of authority indicates that "budgetary constraints alone are insufficient to establish a fundamental alteration defense." Pa. Prot. & Advocacy, Inc. v. Dep't of Pub. Welfare, 402 F.3d 374, 380 (3d Cir. 2005) (collecting cases); see also M.R., 697 F.3d at 736; Frederick L. v. Dep't of Pub. Welfare (Frederick L. I), 364 F.3d 487, 495 (3d Cir. 2004); Fisher, 335 F.3d at 1183 ("If every alteration in a program or service that required the outlay of funds were tantamount to a fundamental alteration, the ADA's integration mandate would be hollow indeed."). "Congress and the courts have recognized that compliance with Olmstead may require `substantial short-term burdens, both financial and administrative' to achieve the goal of community integration." Dinerstein & Wakschlag, supra note 4, at 951 (citations omitted).
For these reasons, Mississippi has not proven an affirmative defense.
People living with SMI face very real, and sometimes very dangerous, symptoms that can make daily life extraordinarily difficult. With those individual challenges comes a system that, even in its best form, will have problems.
As the State has pointed out, at no point during the four weeks of trial was any expert willing to parade their home state as an example of a mental health system without flaws. States from every corner of the country have struggled to provide adequate mental health care services. Mississippi has its own unique challenges due to its rural nature and limited funding.
Despite all of these challenges, the people that care for Mississippians suffering from SMI should be recognized for their efforts to expand community-based care. The State has made some strides. Part of the difficulty of this case is to simultaneously acknowledge that progress and ensure that community-based services ultimately live up to DMH's promises. The fact remains that neither Congress nor the Supreme Court have made a state's good intentions a defense to an Olmstead claim. "General assurances and good-faith intentions... are simply insufficient guarantors in light of the hardship daily inflicted upon patients through unnecessary and indefinite institutionalization." Frederick L. II, 422 F.3d at 158-59.
Perhaps the central difficulty of this case is the question of time. What timeline for expanding community-based services might constitute a reasonable accommodation? The State argues that no timeline at all should be imposed—it is getting there and should be left alone to do the job.
The problem is that the State has known for years that it is over-institutionalizing its citizens. Eleven years ago, the Mississippi Legislature's PEER Committee found that "[a]lthough the mental health environment in the United States has dramatically changed from an institution-based system to a community-based system in recent years, Mississippi's mental health system has not reflected the shift in service delivery methods." PX 363 at 1. Eight years ago, the United States Department
This Court is keenly aware of the judiciary's limitations in a systems case such as this. A mental health system should be run by experts and overseen by state officials who respect the law. The only role of this Court is to consider whether Mississippi's mental health system is operating in compliance with that law. The weight of the evidence proves that it is not. The United States has met its burden and shown that despite the State's episodic improvement, it operates a system that unlawfully discriminates against persons with serious mental illness. That discrimination will end only when every Mississippian with SMI has access to a minimum bundle of community-based services that can stop the cycle of hospitalization.
Since the United States has proven its case, the Court could order the remedy proposed at trial by the Department of Justice and its experts. Acknowledging and understanding the complexity of this system, the progress that the State has made, and the need for any changes to be done in a patient-centered way that does not create further gaps in services for Mississippians, however, the Court is not ready to do so. The Court is hesitant to enter an Order too broad in scope or too lacking in a practical assessment of the daily needs of the system. In addition, it is possible that further changes might have been made to the system in the months since the factual cut-off.
This case is well-suited for a special master who can help the parties craft an appropriate remedy—one that encourages the State's forward progress in a way that expedites and prioritizes community-based care. The evidence at trial showed what the State needs to do. The primary question for the special master is how quickly that can be done in a manner that is practical and safe for those involved.
The parties are therefore ordered to submit, within 30 days, three names of potential special masters and a proposal for the special master's role. A hearing will be held this fall. The proposals and lists may be separate, but the parties should confer prior to that date to see if there might be any agreed-upon candidates respected, competent, and neutral enough to do the job.
This has been a long process. The parties have put nearly a decade's worth of work into this matter. There has been "a lot of talk," "a lot of planning," and "a lot of people ... hurt in the process." Trial Tr. 348. But the Court is optimistic that the parties can achieve a system that provides Mississippians struggling with mental illness "the basic guarantees for which they have worked so long and so hard: independence, freedom of choice, control of their lives, [and] the opportunity to blend fully and equally into the rich mosaic of the American mainstream."
Trial Tr. 1841.